Neurofibromatosis is a scary
diagnoses, there's no doubt about that.
I face those fears all the time, just like you. Fears
for myself and
3 of my 6 children who have been diagnosed with NF.
But what are we to do with our fear?
Let it swallow us?
It's an easy choice to make, to
let NF overwhelm our lives, and spend it in depression,
hiding in our homes away from a public that barely knows
what NF is,
much less understands what we go through on a daily
It's a choice I almost made. I was lucky.
I had people around me to point me to a higher road.
A road of Thriving. A road where we can do more than
live and survive with Neurofibromatosis, but live well
and live happy.
ThrivingWithNF.com is filled with stories both from my
and from people with NF from around the globe.
I continue to add stories as often as they come in.
you explore, you also find other resources, including my
that can help you through your journey with NF, and
continue to support
research and awareness for the worldwide NF community.